Resources
The BBS Clinic in Marshfield Wisconsin
The Clinical Registry Investigating Bardet-Biedl Syndrome (CRIBBS) reflects the time, energy, and vision of the BBS community, including patients, caregivers, families, and researchers, committed to improving the understanding of this complex disease. CRIBBS was designed to promote scientific efforts that touch the lives of and improve healthcare for individuals affected by BBS.
The Autism Society of NC
The Autism Society of North Carolina improves the lives of individuals with autism, supports their families, and educates communities.
The Bardet Biedl Family Association
Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.
Autism Speaks
Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.